
Where women with endometriosis, professionals, and caregivers get and give advice.
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Painful periods aren't normal. Do your homework and find an endometriosis specialist you trust. Make your goal to have one, and only one, surgery.

renevague3
Living with Endometriosis Age: 33 More than 5 years
5
If you're young, like I am, and you need surgery, talk to your doctor about options. I want to have children so when I had excision surgery, I requested that my surg ... read more

Meg C
Living with Endometriosis Age: 27 More than 5 years
1
QUESTION OF THE DAY:
How would you advise another woman to find treatment for endo?
Don’t ever let a doctor make you feel like your pain is in your head. It’s happened to me. Be your own advocate. Keep a record of pain scale, date of pain and variat ... read more

Crystal P.
Living with Endometriosis Age: 27 Female 1 to 5 years
2
Move every day! Even when you don't feel like moving, walking just a few minutes, or putting on music and dancing can make you feel better.

Dr. Sallie Sarrel PT ATC DPT
Living with Endometriosis Age: 44 More than 5 years
7
Listen to your body and intuition. Be a self-advocate and understand doctors are people, too, and don't have all answers. I had numerous doctors tell me I didn't hav ... read more

Jolene
Living with Endometriosis Age: 34 More than 5 years
1
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First and foremost, check out Nancy's Nook! In my opinion, there is no use in attempting to manage symptoms before having the disease excised.

Kate M
Living with Endometriosis Age: 31 More than 5 years
2
Spray magnesium oil on your abdomen and eat healthy! Your diet matters. Also, get checked for SIBO, as it's common to have along with endo.

Living with Endometriosis Age: 33 Female More than 5 years
0
Poll
What’s your top strategy for managing endo pain?
Yoga or pilates!

Dadie
Living with Endometriosis Age: 37 More than 5 years
2
CBD helps immensely, candy or tincture

Living with Endometriosis Age: 40 Female 1 to 5 years
2
Drink tea — it's soothing. I have a lot of diarrhea as a side effect of endometriosis and I've found that mint and lemon-ginger tea help digestion, soothe my anxiety ... read more

Anusha
Living with Endometriosis Age: 35 More than 5 years
2
Advocate strongly for yourself regarding symptoms and treatment of your disease

Dani
Living with Endometriosis Age: 28 More than 5 years
1
No matter how much you think it is, the pain you feel ISN'T NORMAL! Talk to your doctor about starting treatment so you can either stop or even slow the progression.

Bailey
Living with Endometriosis Age: 23 More than 5 years
3
Find a doctor who is experienced and knowledgeable about endometriosis. Don't rely on an average ob/gyn.

Amanda
Living with Endometriosis Age: 30 More than 5 years
5
For pain during sex, my doctor prescribed a valium suppository. During the times when I know I'll be really active, it helps a lot.

Mona Wellington, author, "The Angry Vagina" Living with Endometriosis Age: 44 1 to 5 years
2
I tell friends: If you have painful periods, heavy periods, cramps when you are not on your period and/or painful sex, SEE YOUR GYNO. As women, we tend to talk about ... read more

Rebekah
Living with Endometriosis Age: 44 Female More than 5 years
6
If you are getting surgery, make sure you have a surgeon who knows to remove the WHOLE implant. Otherwise you won't have relief.

Anita Somani, MD, OB/GYN, OhioHealth Riverside Methodist Hospital Healthcare provider for Endometriosis
2
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Endometriosis UK
1 in 10 women has endometriosis, making it almost as common as diabetes.Be persistent. Never give up. Educate yourself and be your own advocate.

Amy
Living with Endometriosis Age: 42 More than 5 years
1
Believe in yourself. If a doctor doesn't believe you or is making you feel "crazy," leave. I've walked out on several doctors and continued to do so until I found a ... read more

Tabitha Britt
Living with Endometriosis Age: 25 Female More than 5 years
2
Keeping informed about the disease — including new treatments — is vital. While there is a lot of information available online, make sure you're accessing accredited ... read more

Dr Anne Henderson, Consultant Gynaecologist, TOTM Healthcare provider for Endometriosis
3