Where people with MS, caregivers, and professionals get and give advice.
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I remind people that you can't always judge a book by its cover.
Living with Relapsing-Remitting MS Age: 38 Female More than 5 years
0
When you are first diagnosed, you might feel angry, shocked, or even relieved. It's okay to feel all of these things! Take your time, educate yourself, and ask your ... read more
Christina
Living with Relapsing-Remitting MS Age: 28 Female 1 to 5 years
2
QUESTION OF THE DAY:
What’s one gadget you love and think other people who have MS should know about it?
I do yoga daily. Getting to the gym 4 times a week for cardio and strength training keeps me ahead of my MS symptoms usually.
Stephanie Lynn Chaney
Living with Relapsing-Remitting MS Age: 39 Female More than 5 years
2
If there was one thing I’d suggest to everyone with a chronic illness, it’s to ask your doctor about a diet and exercise regimen that makes sense for you.
Montel Williams
Former talk show host Living with Secondary-Progressive MS Age: 63 Male More than 5 years
14
Take time every day (even if it’s a mere 20 mins ) to sit alone quietly and just breathe.
Nicole Givenrod
Living with Relapsing-Remitting MS Age: 44 Female More than 5 years
6
MS sufferers tend to experience depression and anxiety, and the key to living with any chronic illness is acceptance and finding meaning in one's suffering. This is ... read more
Nick H.
Care Partner for Multiple Sclerosis Male Less than 1 year
8
Find a creative outlet. By profession, I am a musician, a pianist. However, my MS has diminished the dexterity of the fingers on my left hand, so I can no longer per ... read more
Deb
Living with Secondary-Progressive MS Age: 60 Female More than 5 years
5
Listen to music related to how you are feeling. It helps me a lot.
Living with Secondary-Progressive MS Age: 37 Female More than 5 years
2
It's okay to cry! When I have a patient who doesn't cry when they're given the diagnosis of MS, I ask them, "Why aren't you crying?!" When you have a chronic, incura ... read more
Dr. Aaron L. Boster
Healthcare provider for Multiple Sclerosis
7
Organize your kitchen. If your kitchen is poorly organized and items are not stored in convenient locations, it'll take more energy to move around and get what you n ... read more
Marcia Finlayson, PhD
Healthcare provider for Multiple Sclerosis
5
I've become very interested in the research on effects of early life stressors on bodily health. There's a definite link. One book I find insightful is Gabor Mate's ... read more
Pamela
Living with Secondary-Progressive MS Age: 58 Female More than 5 years
5
Stay as positive as possible. If you let MS win, then it will take over. I slow down during flares and relapses. I have a great support team in my family.
Living with Relapsing-Remitting MS Age: 67 Female More than 5 years
4
Crossword puzzles, sudoku, and reading.
Living with Relapsing-Remitting MS Age: 47 Female More than 5 years
2
Fast Fact
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.
Neurology
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.Pumice stone. I have one in my kitchen to use for cleaning potatoes. I cannot peel them like I used to but this allows me to get them clean and leave just enough ski ... read more
Living with Relapsing-Remitting MS Age: 46 Female More than 5 years
1
If you’re going to have to make a call to your insurance company, or you’re sitting down with your doctor, go in prepared with a bulleted list of generally not more ... read more
Cherie Binns, RN
Living with Relapsing-Remitting MS Age: 67 Female More than 5 years
1
Sharing blogs, memes, articles, etc., that resonate with you might help your family, friends, and employers understand your MS a little bit better.
Trevis
Living with Secondary-Progressive MS Age: 50 Male More than 5 years
1
Poll
What’s the best thing you’ve done to manage MS at work?
Replace the mouse on your computer with either an adaptive computer mouse that uses a trackball or you can you can control the mouse with your foot on the floor.
Caleb Backe
Care Partner for Multiple Sclerosis Age: 30 Male More than 5 years
7
One daily habit that I’ve incorporated and I think has improved my overall quality of life is that I try to take at least 5, maybe 10, minutes every morning just for ... read more
Cherie Binns, RN
Living with Relapsing-Remitting MS Age: 67 Female More than 5 years
1
I take CBD oil in the morning and it helps with pain and spasticity throughout the day. At night, a cannabis brownie before bed gives me a great and mostly pain-free ... read more
Joanne
Living with Secondary-Progressive MS Age: 61 Female More than 5 years
12